Pseudobulbar Affect Voices (PBA Voices) is a group of patient, provider, and health care advocacy organizations representing populations that live with PBA and provider organizations that treat it. Collectively, our goals are to help those living with the condition, as well as their health care providers and caregivers, and to build awareness to better diagnose, track, and treat the disease.
Patients must have access to all safe and effective treatments for Pseudobulbar affect syndrome.
Patients and physicians should have all the information necessary to make a fully informed choice about beginning a treatment for Pseudobulbar affect syndrome.
More must be done to diagnose and track the instance of Pseudobulbar affect syndrome among patients with traumatic brain injury (TBI) Multiple Sclerosis (MS) Parkinson’s disease, ALS and all other brain disorders that can have PBA as a co-condition.
PBA syndrome needs more innovation and research now, including a market that ensures incentives for developing new treatments for patients.
The Brain Injury Association of America is the country’s oldest and largest nationwide brain injury advocacy organization, whose mission is to advance awareness, research, treatment, and education and to improve the quality of life for all people affected by brain injury. The Association is dedicated to increasing access to quality health care and raising awareness and understanding of brain injury.