RESOURCES

For Caregivers

For Patients      |      For Caregivers      |      For Providers

CAREGIVING, WHILE REWARDING & CRITICAL, CAN ALSO BE STRESSFUL. TRY THIS:

  • If you know someone with PBA, listen to his or her frustrations and concerns, and remind him or her that a physical condition (PBA) – not a mental one – is involved.
  • Stay informed about PBA – Check out the News page.
  • Accompany your individual with PBA to doctor appointments, when possible. Share your observations about episodes, discuss treatment options, and process the doctor’s advice.
  • Raise awareness about PBA – Talk with family and friends about what it is, what to expect, and what they can do if they know someone impacted by PBA.
  • Take care of yourself – Go for a walk, try a relaxation technique like meditation or breathing exercises, listen to music, or enjoy a cup of tea.
  • Manage your time – Logistics, schedules, appointments and errands – caregiving and otherwise – add up. Get and stay organized! Try an app, use the notepad on your mobile device, or keep a tried-and-true hard copy datebook or paper calendar.
  • Seek out other caregivers to build your own support network – online or in-person.